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Headshot of Sarene Leeds

Sarene Leeds

About

Sarene Leeds holds an MS in Professional Writing from NYU, and is a seasoned journalist dedicated to reporting on autism, women's health, parenting, mental health, TV, and pop culture. Her work has appeared in HuffPost, Verywell, Rescripted, Rolling Stone, The Wall Street Journal, Vulture, SheKnows, and numerous other outlets.

Experience

Sarene has worked as a writer and journalist for over 20 years. She is also the proud mother of an autistic daughter, an experience she draws from in her writing as an autism advocate.

Education

MS in Professional Writing from NYU (2022)

BA in Journalism from Brandeis (1999)

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Recent Articles by

Sarene Leeds

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Understanding Autism

Understanding 'High-Functioning' Autism: Traits and Misconceptions

As our understanding of the autism spectrum evolves, so does the language associated with autism spectrum disorder (ASD). And that language matters. 
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Right before my daughter was diagnosed with ASD, I felt like everyone around me was using the phrase “high-functioning autism” to describe her relatively moderate support needs. It also seemed to confirm why it took several years to receive an autism diagnosis at all. I soon learned, however, that describing someone with “high-functioning autism” was not only incorrect but harmful. 
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For starters, “high-functioning autism” isn’t even a clinical diagnosis, though the term is pervasive enough that some people may mistake it for one.  

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What the best-intentioned people usually mean when they say “high-functioning” is Level 1 or low support needs, which often refers to someone who needs circumstantial support with social communication and restricted or repetitive patterns of behavior and interests (RRB).

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Specifically, that can mean help with managing the need for sameness, recognizing neurotypical social functioning and cues, and managing sensory sensitivities. Autistic people who are Level 1 may also engage in masking, which can make someone seem to have fewer support needs than what is actually sustainable.
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Nasiyah Isra-Ul (they/she) is an autistic professional and disability advocate who believes that the once-prevalent “high-functioning autism” label prevented them from receiving the support they needed throughout their childhood and young adulthood. It could also explain why they received a late autism diagnosis as an adult.
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If you’re curious about signs of high-functioning autism in adults, you’re in the right place! But we won’t be using that problematic term, and neither should you. In this article, we’ll explain why the term is outdated, what people actually mean by it, and what the most common autistic traits look like for adults with Level 1 autism support needs or who mask heavily.

Sarene Leeds
December 4, 2025
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Related Conditions

OCD and Autism: Understanding the Differences, Overlaps, and Support Options

Having autism and obsessive-compulsive disorder (OCD) can be confusing for people with both conditions, especially because there are so many similarities between OCD and autism. It can also be a puzzle for people trying to figure out if they have autism or OCD.

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However, overlapping traits, such as repetitive behaviors, can sometimes lead to an overall misunderstanding of the support people with these co-occurring conditions may need. This is mainly because although the characteristics of both autism and OCD are alike, the underlying reasons behind those behaviors are rather different. 

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‍As with autism, people with an OCD diagnosis are considered neurodivergent because they respond to the world differently than neurotypical individuals.

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No matter where you are in your journey toward understanding OCD and autism (whether you’re considering an evaluation or have recently received a diagnosis), this article unpacks the differences between these conditions, as well as where they overlap. In addition, we’ll discuss understanding what it means to have both autism and OCD, as well as the supports available to you. 

Sarene Leeds
December 18, 2024
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Diagnosis

How to Get Tested for Autism as an Adult: A Comprehensive Guide

Have you ever thought about getting tested for autism?

Perhaps because, as both a child and an adult, you’ve always felt misunderstood or out of sync with your peers. You could never quite put your finger on why you were different, but deep down, you knew there had to be an underlying reason. As our collective understanding of autism and diverse neurotypes grows, more and more people are realizing their autism might have been missed when they were kids and are now seeking a diagnosis in adulthood. 

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The day we received my daughter’s autism diagnosis, it felt like the world finally opened its doors to our family. But so many autistic individuals have lived their entire lives without knowing they are neurodivergent, and as a result, aren’t getting the support they need. Luckily, it’s never too late to get an autism diagnosis, but the process can feel intimidating. Where do you even start? Especially when autism testing options for adults, as well as data on autistic adults, are still relatively limited. 

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For example, the Centers for Disease Control estimates that 1 in 45 adults in the United States is autistic, but many are undiagnosed. 

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The good news is that there is growing recognition of the need for more accessible and respectful autism assessments and diagnoses. This has led to a push to improve the overall autism testing process for adults in recent years. According to a study published in JAMA Network Open, the rate of diagnosis in young adults (age range: 26-34) rose 450% between 2011 and 2022.

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Getting yourself tested for autism can feel like an overwhelming task. That’s why Prosper Health is here to provide you with a step-by-step, supportive guide that will give you everything you need to know about the diagnostic process, from self-reflection to post-diagnosis support and resources. 

Sarene Leeds
November 19, 2024
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