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Why Many Adults Receive a Late Autism Diagnosis, And What to Do Next
Getting diagnosed with autism later in life, whether it’s in your 20s or 40s or even your 60s, can be a total game-changer. It can impact your entire sense of identity and how you interact with the world and others. It can also bring a profound feeling of relief while answering many questions, including: why did it take so long to figure this out?
For Tobey, 41, the turning point following his clinical diagnosis was a deep sense of self-acceptance. “Once I stopped burning energy on hiding and masking, I was able to redirect that effort into becoming my true self,” he says. “The difference has been huge.”
Tobey is far from the only adult who spent decades living with undiagnosed autism. In fact, the rate of autism in adults has been steadily increasing. Between 2011 and 2022, the autism diagnosis rate increased by 450% among 26-to 34-year-olds alone.
Today, the Centers for Disease Control and Prevention (CDC) estimates that one in 45 adults is autistic, and even more are likely undiagnosed. This rise is due to the improved understanding of the condition (and acknowledgement that autism is a true spectrum, rather than a collection of specific traits) thus leading to updated diagnostic criteria.
Whether you’re newly diagnosed yourself or are considering getting an adult autism evaluation, you probably have a lot of questions. In this article, we’ll provide a neurodivergent-affirming breakdown of why many adults receive a late autism diagnosis, and we’ll unpack both the challenges and benefits, as well as how to access support.
What Are Signs of Autism in Adults? A Guide to Autistic Traits and Self-Discovery
When you picture someone with autism, there’s a good chance that a child comes to mind. Maybe your nephew or a member of your child’s class is diagnosed, so you’re familiar with some of the behaviors associated with the condition...or at least how they show up in children. But millions of autistic adults exist too, since autism is a distinct neurotype, not something you grow out of.
However, if the condition wasn’t assessed already in childhood, it can be harder to spot as an adult. In fact, the Centers for Disease Control and Prevention (CDC) estimates that one in 45 adults is autistic, and even more are likely undiagnosed.
Though there are many shared traits between the age groups, autism can present differently in adults than in children, which is something we'll discuss in depth within this article. But fundamentally, the signs of autism in adults include a range of characteristics like:
- Social interaction and communication differences
- Self-soothing and self-regulatory behaviors
- Sensory and processing differences
- Special interests and activities
- Emotional regulation and cognitive traits
If you suspect you may be autistic, you likely know the journey toward diagnosis isn’t so straightforward. It can be confusing and frustrating! Especially since no two people with autism are the same, and everyone has their own unique combination of strengths and challenges.
On top of that, many adults tend to mask their autistic behaviors to fit in with their neurotypical peers, oftentimes without even realizing it. Plus, thanks to gender and cultural bias and other stereotypes, countless autistic adults are overlooked due to their more subtle presentation of the condition.
That’s why Prosper Health is here to provide you with a clear, inclusive, neurodivergent-affirming breakdown of adult autism signs: what they are, why they’re often missed, and what to do if they resonate.
