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Understanding Autism Resources: Insights, Information, and Support
Autism is a complex and multifaceted condition that affects individuals uniquely, shaping how they experience and interact with the world. Gaining a deeper understanding of autism is the first step toward building empathy, fostering inclusion, and providing effective support. This resource collection is dedicated to exploring the fundamentals of autism. Whether you’re a loved one of an autistic adult, an educator, a therapist, or simply someone looking to learn more, these articles offer valuable insights and perspectives to help you better understand autism and its impact on individuals.
Recent Articles
Unraveling the Mystery of Misdiagnosed Autism
Have you ever heard the phrase, “If you hear hoofbeats, think horses, not zebras”? This metaphor, dating back to Dr. Theodore Woodword in the 1940s, reminds doctors what to prioritize when evaluating a patient’s symptoms. It tells doctors to focus on the most likely diagnosis (the “horse”) for the presenting symptoms before considering what’s less likely (the “zebra”), even if the unlikely zebra seems to fit.
Being autistic can feel like being a zebra in a world of horses—which is no wonder since autistic people make up only about 2% of the U.S. population. Autism is a neurodevelopmental condition characterized by social and communication differences and a preference for sameness and repetition. It’s a specific constellation of traits, the presentation of which varies greatly from person to person.
Misconceptions around the autism spectrum and common biases mean that many autistic individuals go undiagnosed or misdiagnosed. By some estimates, approximately 1 in 4 autistic individuals (and 1 in 3 autistic women) have received a misdiagnosis of a psychiatric condition before being diagnosed with autism. Autism is not a mental health diagnosis, but it can have some things in common with mental health diagnoses, and some clinicians who don’t specialize in autism might not be able to tell the difference.
The misdiagnosis of autism matters to healthcare providers, educators, and, most of all, autistic individuals and their families. Keep reading to learn about the consequences of misdiagnosis and why autism might be misdiagnosed.
Navigating Autism: How to Identify and Cope with Personal Triggers
Autism spectrum disorder is a neurodevelopmental disorder that impacts how an individual communicates and experiences the world. Autistic behaviors may include intense and limited interests, repetitive behaviors, sensory sensitives and difficulty recognizing and expressing emotions.
Autistic individuals may experience meltdowns. A meltdown is an intense and involuntary reaction to the challenges that autism presents, like intense sensory experiences, navigating tricky social situations and emotional dysregulation.
In mental health circles, a trigger refers to an event or feeling that causes a strong emotional response. Neurotypical and neurodiverse individuals alike have triggers, and everyone’s triggers are different. A neurotypical person may feel sadness or nervousness when being confronted with one of their triggers. For autistic individuals, however, being exposed to a trigger can lead to a meltdown.
Meltdowns are stressful and incredibly unpleasant to experience. For autistic adults, meltdowns will happen occasionally, but having a better understanding of individual triggers may help them prevent meltdowns when possible.
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Understanding Autism in Adult Women: Why It’s Often Missed and What It Really Looks Like
When I was a little girl in the early 2000s, autism was seen as a disorder that only boys had. My evaluators misdiagnosed my autism as ADHD, and mistreated my symptoms (my stims, masking, and social anxiety). Luckily, awareness around the rainbow of autistic presentations is growing, and things are starting to change. As an AFAB person who now identifies as non-binary, I was able to seek re-diagnosis and affirmation that I'm autistic—something I suspected for the majority of my life.
According to a recent study published in JAMA, autism diagnosis is increasing fastest among women between the ages of 26 and 34. And among those, women sought diagnosis a whopping 3 times more than men. This comes as no surprise, as autism is actually underdiagnosed in women because of biases in testing. The research behind these tests predominantly focused on the experiences of men and boys, so clinicians have trouble catching the varied autistic traits in women and AFAB folks.
This article will focus mainly on the experience of autistic adult women because the medical research is only just starting to catch up with AFAB experience. However, it’s worth noting the ways autism presents in nonbinary people.
Transgender and nonbinary people are around five times more likely to be autistic compared to cisgender people. The Autistic Women and Nonbinary Network’s website is a good place to start if you’d like to find autistic nonbinary people writing about their experiences.
Autism manifests in very specific ways in adult women that have been ignored until now. If you’re a woman or AFAB person wondering if you might be autistic, support is available. Read on to learn more.
